Chosen [not] to be – Marinka Masséus


Chosen [not] to be is a series about Down’s syndrome. A social activism project to bring awareness and act as a catalyst for government to make changes. These 5 girls, representing the Down’s syndrome’s community question and challenge a few questions that we are now facing.

  • What is beauty? As part of the Radical Beauty Project, which is about “challenging opinions and understandings of beauty in contemporary culture… working to provide an alternative vision for beauty today”, are we embracing diversity in the art fields? Why are we still considering Down’s as “faulty”?
  • With the rapid technological developments concerning prenatal screening (NIPT), we have the ability to know and decide whether we want to keep the child. So then are Down’s getting extinct? Are we embracing diversity of human forms?

What strikes me the most is that throughout this project, the artist found out that when the results of prenatal screening confirms Down’s, the first question the physician asks is “when are we scheduling the abortion”. Instead of asking “what do you need from me to make the best decision for you and your family”, the woman is immediately steered towards ‘getting rid of it’. Which means that the woman in question will never receive the proper information to make an informed decision about her new baby and prospective addition to her family. So the question is, what is the society and culture shaping us morally and ethnically?

In terms of the visual elements and conceptual symbolism, I must say I don’t really understand. What does the rope all over her face leaving an open eye means? It feels to me that the rope represent struggles from the outer-world, and that even that is so, she is piercing through. What about the dead plant on top of her head? It feels to me that the higher ups (those with authorities) are treating Down’s as dead weight, but still her face not entirely covered may mean that they are fighting against this issue. What about the pixels covering her face? Usually in television, we cover those who are of crime, or of shame with pixels to blur out their faces, so as they say to protect them from being recognised but also shaped us to label these are people as shameful and of vulnerable and dangerous groups. Marinka has cleverly used this symbolism to represent that conflict. Are they or should they be the protected type? Are we or should we be ashamed of them? But why she used yellow pixels I’m not entirely sure. Finally, the velvet circle and lines in on of the photographs. What does that represent? The lines reminded me about geometry and that maybe it means society or the outerworld is boxing this group of community. There are still other symbolic images that I have no clue why the artist uses it that way – e.g. the green smarties around Down’s faces. Or those red dots on a black and white landscapes etc.

All in all, I believe this is an important piece of work that brought us to question some very important topics about humanity. And what I admire the most and hopefully works out is, that it really does act as a catalyst for governmental changes. That we will have to wait and see.